Distinguish between the Myths and Facts about Hemophilia
Edited by Lor777, Anonymous, Eng, Ian Gabriel T. Tolledo and 2 others
What did you think when you first heard the word hemophilia?? It may have been a completely unfamiliar term before your child was born. You may have heard of prenatal tests for Down syndrome or spina bifida, but not hemophilia, unless it was known to run in your family. Yet in one third of diagnosed hemophilia cases, there is no family history of the condition.
Hemophilia is a genetic disorder that prevents blood from forming an effective blood clot. Internal injuries and large lacerations cannot heal properly without effective blood clotting. Although hemophilia not follow a racial or geographic pattern, it is found almost exclusively in males, occurring in approximately 1 of every 10,000 males births. It has been estimated that about 20,000 people in the United States have been diagnosed with hemophilia, accounting for only .006% of the US population--that's much less than even 1%. Let's put this in perspective: Down syndrome occurs in 1 of every 1,000 births, spina bifida in about 2 of every 1,000 births. Compared to 6,000 US children born with spina bifida each year, only 150 to 300 children are born with hemophilia. Hemophilia is very rare.
Perhaps because hemophilia is so rare, it prompted many myths that are still believed, even by some medical personnel! Myths are simply stories, or nonscientific explanations, created by people in an attempt to make something understandable. Myths almost always develop when people lack scientific information. When you learn what hemophilia is really like, your worries will probably vanish along with the myths.
When you encounter people, even physicians, who still believe in hemophilia myths, try to educate them. Becoming familiar with the most widely held myths and their sources will help you explain to people why such stories are false. Here are some common myths about hemophilia:
Myths and Facts about Hemophilia
- 1MYTH, Hemophilia is a royal disease.FACT: Sorry, our children are not linked to royalty, although that would sure help pay the bills! Anyone can get hemophilia, rich or poor, famous or unknown. In the 1800s, hemophilia affected the royal family of Queen Victoria of England, who was a spontaneous carrier of the gene. Hemophilia was transmitted to three other royal families when Victoria's daughters and granddaughters, who were also carriers, married into the Russian, German, and Spanish royal families. However, all descendants of these families who had hemophilia or who carried hemophilia have been dead for many years.Advertisement
- 2MYTH, A cut will cause blood to rush out, and the child will bleed to death.FACT: Children with hemophilia do not bleed faster than anyone else! this is one of the most popular hemophilia myths. The blood of every person flows at the same rate. Bleeding may seem faster in a person with hemophilia, whose blood clots at a slower rate and who can bleed for a longer time. Still, not every cut will continue to bleed. Some cuts heal on their own. In developed countries, where excellent medical facilities, products, and information are available, rarely would a child with hemophilia bleed to death.Advertisement
- 3MYTH, Children with hemophilia cannot play sports.FACT: Remember this myth when you are chauffeuring your child to Little League games, field days, and karate lessons, and you're huffing and puffing to keep up with him! Today, children with hemophilia enjoy a wide variety of sports including swimming, baseball, tennis, running, and martial ares. Rough contact sports, such as football, hockey, and boxing, are usually not advised (much to the relief of many mothers, hemophilia or not. Some children who are on preventive prophylactic treatment can participate in many competitive sports. Physical activity is always encouraged for a child with hemophilia to build strong, protective muscles; for normal social, cognitive, and physical development; and for aerobic benefits.
- 4MYTH, Children with hemophilia must wear helmets and protective gear.FACT: Most children with hemophilia today do not wear helmets, and many do not wear protective gear for normal activities. Why? Treatments today are excellent and easy, providing a normal lifestyle for children with hemophilia. In the past, many children did wear helmets because hemophilia treatments were less advanced, and the benefits of wearing a helmet outweigh any social discomfort. Today some children wear gear when the doctor and parents agree it is necessary, particularly for toddlers or children who have had a previous head bleed (and these are rare!). As is the rule for all children, helmets should always be worn when riding bikes or motorcycles or when skiing.
- 5MYTH, Children with hemophilia must attend a special needs school.FACT: Except for a tiny defective blood protein, our children have normal health and intelligence. Besides, there are no special schools for children with hemophilia. Overall, your child is normal and will be treated as such by the school system and the public.
- 6MYTH, Children with hemophilia will grow out of it.FACT: Hemophilia is a lifelong condition. Your child does not have a disease that will get better or go into remission. Your child will not grow out of hemophilia, because the mechanism for producing clotting factor simply is not there. Having hemophilia is more like missing a body part, such as a finger, which cannot grow back on its own.
- 7MYTH, Hemophilia causes AIDS.FACT: There is no direct causal connection between hemophilia and the virus that causes AIDS. People with hemophilia are not more susceptible to human immunodeficiency virus (HIV) infection than anyone else. HIV is transmitted through body fluids, including blood. Many people with hemophilia contracted HIV between 1978 and 1985 when they were given blood factor derived from tainted blood donations. Since March 1985, all blood products are tested for the presence of HIV, and most blood products are treated to remove HIV.
- 8MYTH, Hemophilia is caused by something bad you did during pregnancy.FACT: Aerobics, mountain climbing, stress, lack of exercise, drinking six cups of coffee daily, or craving Snickers bars did not give your baby hemophilia. Women who have perfect pregnancies and follow every safety precaution can give birth to children with hemophilia. There is nothing you could have done to prevent your child from having hemophilia, just as there is nothing you could have done to change his hair or eye color. Hemophilia is simply part of his genetic makeup.Advertisement
Tips Tricks & Warnings
- Believe the facts, not the numerous myths out there about hemophilia.
- Remember, treatment of hemophilia has come a long way.
- Physical activity is always encouraged for a child who has hemophilia.
Questions and Answers
Hemophilia blood clotting natural remedies?
The medical condition "Hemophilia" or simply "Hemophilia" is a genetic disorder in the body wherein the blood lacks the clotting factors VIII and IX which impairs the normal blood clotting in the body and increases the risk of internal or external bleeding.
A good natural remedy for Hemophilia is eating vegetables rich in Vitamin K. The vitamin K plays a major factor in blood clotting. The vitamin K is synthesized by the liver to make clotting proteins which helps in blood clotting, minimizing the risk of internal and external bleeding.The vitamin K can be found abundant in green leafy vegetables.
These are the vegetables rich in Vitamin K:
Another good natural remedy to minimize the risk of internal or external bleeding is to regularly exercise this is to prevent your joints and muscles from atrophy which predisposes to bleeding. A regular daily exercise helps strengthen your muscles and minimizes joint injuries.
If bleeding already taking place, these are the steps to properly manage the bleeding by simply remembering "RICE". RICE stands for:
R = REST I = ICE C= COMPRESSION E = ELEVATION
- Rest the injured part.
- Apply ice pack on the area.
- Wrap the affected or the injured part with a clean or sterile bandage.
- Raise or elevate the injured part higher than the heart to minimize further blood loss.
The above tips are some of the natural remedies to properly minimize the risk of internal and external bleeding due to Hemophilia.
Do people with hemophilia have a normal health?
Is it true or false? I need to know for my school project. Thank you.
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Categories : Blood Disorder & Issues
Recent edits by: Alma, Ian Gabriel T. Tolledo, Eng